Well we had Harper’s pre-op yesterday meaning the countdown to her hip surgery is now on, I’m feeling a little bit nervous and it all feels a little bit more real now, and I’m still convinced this won’t be the end of it and she’ll be needing further treatment down the line but I’m trying hard just to deal with what I’ve got I front of me instead of worrying about things that haven’t even occurred yet (my speciality!)
The appointment was straight forward, thy took some swabs for MRSA and that was about it on the medical side of things, they had an Occupational Therapist and a Physio there to discuss the equipment I would need to get and to talk me through how I would be changing her nappies through the tiny hole they leave from the plaster cast (sounds fun but I do have a cunning plan on how I’m going to make this a breeze which I’ll be posting about another day)
The one thing I wasn’t prepared for was we were told she would have to stay in overnight, in our original letter we’d been told it would be day case surgery and she’d be home by the end of the day but as they want to do a CAT scan on her hips the following day we have to remain in hospital overnight and til the afternoon the following day. This means I’ll be living off cups of tea and sandwiches from the cafe for 2 days and getting zero sleep but in some ways that’s not terribly different to everyday life at home.
We’ve been lucky enough to pick up both a hip spica table (basically a seat with a tray that’s fairly ground level that a child in a hip spica cast can sit in) as well as a highchair from a very kind member of a Facebook group I found for other parents whose children are undergoing hip treatment, but we were told we would need to get a new car seat or hire one. As Harper’s hips are going to be set quite wide most car seats are not suitable, the cost to hire them seems to start around the £100 mark from Maxi Cosi with £50 refunded at the end of rental and up to £250 for other popular seats like the Britax elite 2-way. Again using Facebook I was lucky enough to find a Britax Elite that’s barely been used for only £80 and as an added bonus it’s one of the few chairs on the market that lets you use a harness to strap your child in up to 25Kg – which means once Harper’s finished with it it’ll be a great chair for Chase to use when he’s not travelling in his wheelchair
Next on my list to get prepared is to start searching for clothes to wear over the hip spica as well as trying to find a cosy toes that’ll be big enough to go over the plaster. I’m going to be attempting to make my own fleece star baby wrap too which I’ll be blogging about – even if it’s a complete disaster – which is most likely given my current sewing skill level is comparable to a 7-year-old
For those of you who are going through the same thing I’ll be adding a blog post later this week about equipment, websites, Facebook groups and some unique ideas I’ve found whilst researching how on earth I’m going to deal with everything!